{"product_id":"a-family-disease-dana-lorene-creighton-9781476683188","title":"A Family Disease: A Memoir of Multigenerational Ataxia","description":"\u003cp\u003e Dana Creighton and her mother both were affected by the same inherited cerebellar degeneration, known as ataxia--a loss of control over body movements. Both were treated by a healthcare system that failed them in different ways. Yet their experiences were disparate.\u003c\/p\u003e\u003cp\u003e Creighton eventually found the right tools to piece together meaning in her life; her mother resisted accepting her condition, in part because doctors repeatedly said nothing was wrong with her. Twenty-five years after her mother's suicide, Creighton's memoir finds striking similarities and differences in their lives and traces a lineage of family trauma. \u003c\/p\u003e\u003cp\u003e Drawing on research in neuroplasticity, medical records, personal correspondence and genealogy, the author highlights the gap between the lived experience of a debilitating ailment and the impersonal aims of clinicians. She shows how the stories parents tell themselves about living with a genetic disorder influences how they communicate it to their children. \u003c\/p\u003e\u003cbr\u003e\u003cbr\u003e\u003cb\u003eAuthor:\u003c\/b\u003e Dana Lorene Creighton\u003cbr\u003e\u003cb\u003eISBN-10:\u003c\/b\u003e 1476683182\u003cbr\u003e\u003cb\u003eISBN-13:\u003c\/b\u003e 9781476683188\u003cbr\u003e\u003cb\u003ePublisher:\u003c\/b\u003e Toplight Books\u003cbr\u003e\u003cb\u003eLanguage:\u003c\/b\u003e English\u003cbr\u003e\u003cb\u003ePublished:\u003c\/b\u003e 01\/25\/2021\u003cbr\u003e\u003cb\u003ePages:\u003c\/b\u003e 202\u003cbr\u003e\u003cb\u003eFormat:\u003c\/b\u003e Paperback\u003cbr\u003e\u003cb\u003eWeight:\u003c\/b\u003e 0.67lbs\u003cbr\u003e\u003cb\u003eSize:\u003c\/b\u003e 9.00h x 6.00w x 0.47d","brand":"Dana Lorene Creighton","offers":[{"title":"Paperback","offer_id":44126930305279,"sku":"9781476683188","price":19.99,"currency_code":"USD","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0662\/2982\/9887\/files\/img_98b6caf0-e011-409e-8e1e-4d60657ee3c7.jpg?v=1687450940","url":"https:\/\/www.whiterainbookhouse.com\/products\/a-family-disease-dana-lorene-creighton-9781476683188","provider":"WR Book House","version":"1.0","type":"link"}