{"product_id":"a-guide-to-hereditary-spastic-philippa-lee-9798282241358","title":"A Guide to Hereditary Spastic Paraplegia: The Essential Handbook for Patients, Families, Caregivers, and Healthcare Professionals","description":"Hereditary Spastic Paraplegia (HSP) is a rare, progressive neurodegenerative disorder primarily characterized by spasticity and weakness in the lower limbs. Estimates suggest that HSP affects approximately 2 to 6 individuals per 100,000 people worldwide. \u003cp\u003e\u003c\/p\u003eWhile HSP is a rare condition, its impact varies across different populations and genetic subtypes. Ongoing research and improved diagnostic methods are essential to understand the global prevalence better and to provide appropriate care and support for affected individuals. Getting a diagnosis is often a long, drawn-out procedure and fraught with difficulties. \u003cbr\u003eFrom information on how to navigate an initial diagnosis to management, treatment, exercise, and daily life, this book aims to help both newly diagnosed and long-term HSP patients understand the condition and how to manage it with a view to living well.\u003cp\u003e\u003ci\u003eA Guide to Hereditary Spastic Paraplegia\u003c\/i\u003e aims to explain and demystify this little-known, rare neurological disease. Aimed primarily at those with HSP, their loved ones, and caregivers, it is a comprehensive guide to the condition, the diagnostic process, treatments, symptom management, and how to live well with HSP. \u003c\/p\u003e\u003cp\u003e\u003c\/p\u003eWhether yo are newly diagnosed, a long-term patient, or a clinician seeking deeper understanding, this book demystifies every step of the journey. Inside, you will find clear guidance on: \u003cul\u003e\n\u003cli\u003eThe diagnostic process and what to expect\u003c\/li\u003e\n\u003cli\u003eTreatments and proactive symptom management\u003c\/li\u003e\n\u003cli\u003ePractical strategies for daily living and independence\u003c\/li\u003e\n\u003cli\u003eNavigating medical appointments with confidence\u003c\/li\u003e\n\u003c\/ul\u003e\u003cp\u003eThe author, who lives with HSP, wrote the book in collaboration with the \u003ci\u003eUK Hereditary Spastic Paraplegia Support Group\u003c\/i\u003e. All proceeds from the book will benefit the Group by continuing to support patients and families and by funding vital research.\u003c\/p\u003e\u003cbr\u003e\u003cbr\u003e\u003cb\u003eAuthor:\u003c\/b\u003e Philippa Lee\u003cbr\u003e\u003cb\u003eISBN-13:\u003c\/b\u003e 9798282241358\u003cbr\u003e\u003cb\u003ePublisher:\u003c\/b\u003e Independently Published\u003cbr\u003e\u003cb\u003eLanguage:\u003c\/b\u003e English\u003cbr\u003e\u003cb\u003ePublished:\u003c\/b\u003e 07\/14\/2026\u003cbr\u003e\u003cb\u003ePages:\u003c\/b\u003e 152\u003cbr\u003e\u003cb\u003eFormat:\u003c\/b\u003e Paperback\u003cbr\u003e\u003cb\u003eWeight:\u003c\/b\u003e 0.47lbs\u003cbr\u003e\u003cb\u003eSize:\u003c\/b\u003e 9.00h x 6.00w x 0.33d","brand":"Philippa Lee","offers":[{"title":"Paperback","offer_id":48997951439103,"sku":"9798282241358","price":19.78,"currency_code":"USD","in_stock":true}],"url":"https:\/\/www.whiterainbookhouse.com\/products\/a-guide-to-hereditary-spastic-philippa-lee-9798282241358","provider":"WR Book House","version":"1.0","type":"link"}