{"product_id":"an-amazing-little-girl-with-stephanie-detjen-costabel-9780578360874","title":"An Amazing Little Girl with Rhombencephalosynapsis","description":"\u003cp\u003e\u003cstrong\u003e\u003cem\u003eCan you say\u003c\/em\u003e\u003c\/strong\u003e\u003c\/p\u003e\u003cp\u003e\u003cstrong\u003e\u003cem\u003eRhombencephalosynapsis?\u003c\/em\u003e\u003c\/strong\u003e\u003c\/p\u003e\u003cp\u003eThis is the story of an extraordinary girl living with an extremely rare brain malformation.\u003c\/p\u003e\u003cp\u003eWith over eighteen surgeries and countless hospitalizations and medical procedures, this incredible child has overcome more obstacles in her short six years of life than most of us endure in a lifetime.\u003c\/p\u003e\u003cp\u003eRhombencephalosynapsis gave way to a set of other difficulties including: Hydrocephalus, Chiari Malformation, feeding tube dependency, Laringomalacia, Microtia, hearing and visual impairment . . . but through it all, this child displayed a mind so brilliant and adaptable that she amazes and inspires us all.\u003c\/p\u003e\u003cp\u003eI would like to offer hope to those new to the journey of parenting a medically fragile, special-needs child. I want to share the realities we lived with- the challenges, the pain, the joy, and all we have learned.\u003c\/p\u003e\u003cp\u003eI would like to increase awareness, sensitivity, and familiarity to what life is like as a mother to a medically challenged child.\u003c\/p\u003e\u003cp\u003e\u003cbr\u003e\u003c\/p\u003e\u003cp\u003e\u003cstrong\u003e\u003cem\u003e\"They said she wouldn't, she did . . . \u003c\/em\u003e\u003c\/strong\u003e\u003c\/p\u003e\u003cp\u003e\u003cstrong\u003e\u003cem\u003eThey said she couldn't, she can . . . \u003c\/em\u003e\u003c\/strong\u003e\u003c\/p\u003e\u003cp\u003e\u003cstrong\u003e\u003cem\u003eThey said she won't, but Oh she will\"\u003c\/em\u003e\u003c\/strong\u003e\u003c\/p\u003e\u003cp\u003e\u003cem\u003eRhombencephalosynapsis\/ Cerebello- Trigeminal Dermal Dysplasia Facebook Support Group\u003c\/em\u003e\u003c\/p\u003e\u003cbr\u003e\u003cbr\u003e\u003cb\u003eAuthor:\u003c\/b\u003e Stephanie Detjen Costabel\u003cbr\u003e\u003cb\u003eISBN-10:\u003c\/b\u003e 057836087X\u003cbr\u003e\u003cb\u003eISBN-13:\u003c\/b\u003e 9780578360874\u003cbr\u003e\u003cb\u003ePublisher:\u003c\/b\u003e Stephanie Detjen Costabel\u003cbr\u003e\u003cb\u003eLanguage:\u003c\/b\u003e English\u003cbr\u003e\u003cb\u003ePublished:\u003c\/b\u003e 02\/24\/2022\u003cbr\u003e\u003cb\u003ePages:\u003c\/b\u003e 246\u003cbr\u003e\u003cb\u003eFormat:\u003c\/b\u003e Paperback\u003cbr\u003e\u003cb\u003eWeight:\u003c\/b\u003e 0.81lbs\u003cbr\u003e\u003cb\u003eSize:\u003c\/b\u003e 9.00h x 6.00w x 0.56d","brand":"Stephanie Detjen Costabel","offers":[{"title":"Paperback","offer_id":44048071000319,"sku":"9780578360874","price":18.95,"currency_code":"USD","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0662\/2982\/9887\/files\/img_db2b9876-d331-4264-a26a-9a030dc0e000.jpg?v=1684993720","url":"https:\/\/www.whiterainbookhouse.com\/products\/an-amazing-little-girl-with-stephanie-detjen-costabel-9780578360874","provider":"WR Book House","version":"1.0","type":"link"}