{"product_id":"brittle-joints-maria-sweeney-9781951491260","title":"Brittle Joints","description":"\u003cp\u003e\u003cb\u003eStarred Review from \u003ci\u003ePublishers Weekly. \u003c\/i\u003e\"It's a revealing visualization of a rare, 'depersonalizing' condition and how Sweeney finds 'drops of disabled joy whenever I can.' Sweeney's subtle and elegant art reflects the nuance of her moment-to-moment struggle.\"\u003c\/b\u003e\u003c\/p\u003e\u003cp\u003e\u003cb\u003e\u003ci\u003eAn evocative and heartfelt graphic memoir about the challenges of living with a progressive disability.\u003c\/i\u003e\u003c\/b\u003e\u003c\/p\u003e\u003cp\u003eWhen Maria Sweeney was young, she kept count of her broken bones. As she grew older, she stopped. Living with Bruck syndrome, a rare progressive condition that gives her very brittle bones and joint abnormalities, meant that those numbers climbed and climbed.\u003c\/p\u003e\u003cp\u003eToday, she struggles every day, living in an often-inaccessible world. As an ambulatory wheelchair user, ordinary actions like entering a building, sitting at a café, or holding a cup of tea can be drastically different for her than for others.\u003c\/p\u003e\u003cp\u003eWith lush illustrations, Maria tells the story of her lifelong struggle to obtain care in an increasingly complicated and disinterested US healthcare system. But for every step that presents a struggle, there's also beauty, friendship, art, and growth. She documents the relief she's found in alternative therapies, particularly medical marijuana; in loving community and chosen family; and in nature and her creative practice. A powerfully understated critique of our modern world, \u003ci\u003eBrittle Joints\u003c\/i\u003e offers a generous, expansive look at how to live and love amidst the challenges of survival.\u003c\/p\u003e\u003cbr\u003e\u003cbr\u003e\u003cb\u003eAuthor:\u003c\/b\u003e Maria Sweeney\u003cbr\u003e\u003cb\u003eISBN-10:\u003c\/b\u003e 1951491262\u003cbr\u003e\u003cb\u003eISBN-13:\u003c\/b\u003e 9781951491260\u003cbr\u003e\u003cb\u003ePublisher:\u003c\/b\u003e Street Noise Books\u003cbr\u003e\u003cb\u003eLanguage:\u003c\/b\u003e English\u003cbr\u003e\u003cb\u003ePublished:\u003c\/b\u003e 06\/25\/2024\u003cbr\u003e\u003cb\u003ePages:\u003c\/b\u003e 160\u003cbr\u003e\u003cb\u003eFormat:\u003c\/b\u003e Paperback","brand":"Maria Sweeney","offers":[{"title":"Paperback","offer_id":44410615857407,"sku":"9781951491260","price":20.99,"currency_code":"USD","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0662\/2982\/9887\/files\/img_67fd07ee-5fca-47f2-85fb-346b00e5a7f8.jpg?v=1697536999","url":"https:\/\/www.whiterainbookhouse.com\/products\/brittle-joints-maria-sweeney-9781951491260","provider":"WR Book House","version":"1.0","type":"link"}