{"product_id":"childhood-onset-severe-neurological-impairment-julie-hauer-9780192867605","title":"Childhood Onset Severe Neurological Impairment: Where Medical Complexity and Uncertainty Meet","description":"\u003cem\u003eChildhood Onset Severe Neurological Impairment\u003c\/em\u003e confronts the uncertain decisions resulting from the intersection between what is intended and what is possible, to achieve the best certainty that lessens decisional regret. Evidence-based and hypothesis-driven strategies are offered to improve health, while a framework covers when and how to reflect with parents and guardians, utilizing an iterative process. \u003cp\u003e\u003c\/p\u003eSpecific circumstances include intractable symptoms, feeding intolerance, intestinal failure, and use of technology. Communication is a cornerstone of this book, with strategies offered throughout and for each specific problem. This book will reinforce and expand skills, while promoting resiliency for individuals and teams. It provides innovative tools from a combination of evidence and the author's 27 years of experience. The content will inform research and quality improvement projects, advancing the quality of our care for children with severe neurological impairment and their families.\u003cbr\u003e\u003cbr\u003e\u003cb\u003eAuthor:\u003c\/b\u003e Julie Hauer\u003cbr\u003e\u003cb\u003eISBN-10:\u003c\/b\u003e 0192867601\u003cbr\u003e\u003cb\u003eISBN-13:\u003c\/b\u003e 9780192867605\u003cbr\u003e\u003cb\u003ePublisher:\u003c\/b\u003e Oxford University Press\u003cbr\u003e\u003cb\u003eLanguage:\u003c\/b\u003e English\u003cbr\u003e\u003cb\u003ePublished:\u003c\/b\u003e 03\/06\/2025\u003cbr\u003e\u003cb\u003ePages:\u003c\/b\u003e 432\u003cbr\u003e\u003cb\u003eFormat:\u003c\/b\u003e Paperback","brand":"Julie Hauer","offers":[{"title":"Paperback","offer_id":46685879435519,"sku":"9780192867605","price":50.0,"currency_code":"USD","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0662\/2982\/9887\/files\/img_36ac2c38-ca81-44f9-80c2-37928e552f6d.jpg?v=1741727045","url":"https:\/\/www.whiterainbookhouse.com\/products\/childhood-onset-severe-neurological-impairment-julie-hauer-9780192867605","provider":"WR Book House","version":"1.0","type":"link"}