{"product_id":"crucible-of-the-incurable-anthony-stavrianakis-9781501778322","title":"Crucible of the Incurable: Facing ALS","description":"\u003cp\u003e\u003cb\u003e\u003ci\u003eCrucible of the Incurable\u003c\/i\u003e\u003c\/b\u003e\u003cb\u003e concerns how people face life with amyotrophic lateral sclerosis (ALS). \u003c\/b\u003eAnthony Stavrianakis spent a year in clinics and with people living with the illness in the United States. He examines the multiple meanings of care in a context of a chronic, degenerative, one-hundred percent fatal, neuromuscular illness, whose most common duration is between two and five years. How do people diagnosed with ALS continue to \"live as well as possible, for as long as possible\" in accordance with the normative work at the heart of outpatient ALS care?\u003ci\u003e Crucible of the Incurable\u003c\/i\u003e shows how those touched by the situation of a person living with ALS bear this problem and this task. Given the sense of certitude around the diagnosis, given past experiences of those aware of its usual progression, and given the uncertainty of the disease's cause and its progression for each specific person; how then do people orient themselves to the experience of life with this illness, how to support those who are confronted with it, and how to provide aid or solace.\u003c\/p\u003e\u003cbr\u003e\u003cbr\u003e\u003cb\u003eAuthor:\u003c\/b\u003e Anthony Stavrianakis\u003cbr\u003e\u003cb\u003eISBN-10:\u003c\/b\u003e 1501778323\u003cbr\u003e\u003cb\u003eISBN-13:\u003c\/b\u003e 9781501778322\u003cbr\u003e\u003cb\u003ePublisher:\u003c\/b\u003e Cornell University Press\u003cbr\u003e\u003cb\u003eLanguage:\u003c\/b\u003e English\u003cbr\u003e\u003cb\u003ePublished:\u003c\/b\u003e 11\/15\/2024\u003cbr\u003e\u003cb\u003ePages:\u003c\/b\u003e 248\u003cbr\u003e\u003cb\u003eFormat:\u003c\/b\u003e Paperback","brand":"Anthony Stavrianakis","offers":[{"title":"Paperback","offer_id":46024632795391,"sku":"9781501778322","price":29.95,"currency_code":"USD","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0662\/2982\/9887\/files\/img_cfe64198-ad4e-4360-8bc0-4936b40036b7.jpg?v=1723128859","url":"https:\/\/www.whiterainbookhouse.com\/products\/crucible-of-the-incurable-anthony-stavrianakis-9781501778322","provider":"WR Book House","version":"1.0","type":"link"}