{"product_id":"returning-individual-research-results-to-national-academies-of-sciences-engineeri-9780309475174","title":"Returning Individual Research Results to Participants: Guidance for a New Research Paradigm","description":"\u003cp\u003eWhen is it appropriate to return individual research results to participants? The immense interest in this question has been fostered by the growing movement toward greater transparency and participant engagement in the research enterprise. Yet, the risks of returning individual research results--such as results with unknown validity--and the associated burdens on the research enterprise are competing considerations.\u003c\/p\u003e \u003cp\u003e\u003ci\u003eReturning Individual Research Results to Participants\u003c\/i\u003e reviews the current evidence on the benefits, harms, and costs of returning individual research results, while also considering the ethical, social, operational, and regulatory aspects of the practice. This report includes 12 recommendations directed to various stakeholders--investigators, sponsors, research institutions, institutional review boards (IRBs), regulators, and participants--and are designed to help (1) support decision making regarding the return of results on a study-by-study basis, (2) promote high-quality individual research results, (3) foster participant understanding of individual research results, and (4) revise and harmonize current regulations.\u003c\/p\u003e\u003cbr\u003e\u003cbr\u003e\u003cb\u003eAuthor:\u003c\/b\u003e National Academies of Sciences Engineeri,Health and Medicine Division,Board on Health Sciences Policy\u003cbr\u003e\u003cb\u003eISBN-10:\u003c\/b\u003e 0309475171\u003cbr\u003e\u003cb\u003eISBN-13:\u003c\/b\u003e 9780309475174\u003cbr\u003e\u003cb\u003ePublisher:\u003c\/b\u003e National Academies Press\u003cbr\u003e\u003cb\u003eLanguage:\u003c\/b\u003e English\u003cbr\u003e\u003cb\u003ePublished:\u003c\/b\u003e 09\/23\/2018\u003cbr\u003e\u003cb\u003ePages:\u003c\/b\u003e 398\u003cbr\u003e\u003cb\u003eFormat:\u003c\/b\u003e Paperback\u003cbr\u003e\u003cb\u003eWeight:\u003c\/b\u003e 1.40lbs\u003cbr\u003e\u003cb\u003eSize:\u003c\/b\u003e 9.00h x 6.00w x 1.20d","brand":"National Academies of Sciences Engineeri","offers":[{"title":"Paperback","offer_id":48447699550463,"sku":"9780309475174","price":85.0,"currency_code":"USD","in_stock":false}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0662\/2982\/9887\/files\/img_98d19327-bf8a-4c22-9f6e-48c2a63b6e36.jpg?v=1777234209","url":"https:\/\/www.whiterainbookhouse.com\/products\/returning-individual-research-results-to-national-academies-of-sciences-engineeri-9780309475174","provider":"WR Book House","version":"1.0","type":"link"}