{"product_id":"the-cornelia-de-lange-syndrome-steph-e-whitehouse-mat-9798303182424","title":"The Cornelia de Lange Syndrome Sourcebook: A Comprehensive Guide for Families","description":"Cornelia de Lange Syndrome (CdLS) is a rare genetic disorder that impacts growth, development, and behavior, affecting individuals and their families in profound and unique ways. This comprehensive guide delves into the science behind CdLS while celebrating the strength, resilience, and determination of those living with the condition.\u003cbr\u003eThrough a combination of expert insights and heartfelt patient stories, this book explores: \u003cul\u003e\n\u003cli\u003eThe genetic foundations of CdLS and its diverse physical and behavioral characteristics.\u003c\/li\u003e\n\u003cli\u003eStrategies for early diagnosis, therapeutic interventions, and education.\u003c\/li\u003e\n\u003cli\u003ePractical advice for navigating medical care, building independence, and transitioning to adulthood.\u003c\/li\u003e\n\u003cli\u003eAdvances in research, including cutting-edge genetic therapies and innovative technologies.\u003c\/li\u003e\n\u003c\/ul\u003eWhether you are a parent, caregiver, educator, or medical professional, \u003cb\u003e\"The Cornelia de Lange Syndrome Sourcebook\"\u003c\/b\u003e offers a wealth of knowledge and support. Filled with hope and inspiration, this book is a vital resource for anyone touched by CdLS and a testament to the extraordinary potential of the human spirit.\u003cbr\u003e\u003ci\u003eDiscover the science. Celebrate the stories. Join the journey of resilience and hope.\u003c\/i\u003e \u003cp\u003e\u003c\/p\u003eABOUT THE AUTHOR \u003cp\u003e\u003c\/p\u003eSteph E. Whitehouse has been a dedicated health science writer for over 20 years, bringing expertise and compassion to her work. With an undergraduate degree in Healthcare Administration and a master's degree in Teaching, Steph combines her knowledge and passion for helping people lead healthier lives. Her approachable writing style makes complex health issues clear and accessible for all readers. Steph is also a Fellow of the Life Management Institute (FLMI), further showcasing her commitment to excellence and professionalism.\u003cbr\u003e\u003cbr\u003e\u003cbr\u003e\u003cb\u003eAuthor:\u003c\/b\u003e Steph E. Whitehouse Mat\u003cbr\u003e\u003cb\u003eISBN-13:\u003c\/b\u003e 9798303182424\u003cbr\u003e\u003cb\u003ePublisher:\u003c\/b\u003e Independently Published\u003cbr\u003e\u003cb\u003eLanguage:\u003c\/b\u003e English\u003cbr\u003e\u003cb\u003ePublished:\u003c\/b\u003e 12\/09\/2024\u003cbr\u003e\u003cb\u003ePages:\u003c\/b\u003e 118\u003cbr\u003e\u003cb\u003eFormat:\u003c\/b\u003e Paperback\u003cbr\u003e\u003cb\u003eWeight:\u003c\/b\u003e 0.37lbs\u003cbr\u003e\u003cb\u003eSize:\u003c\/b\u003e 9.00h x 6.00w x 0.25d","brand":"Steph E. Whitehouse Mat","offers":[{"title":"Paperback","offer_id":46881214169343,"sku":"9798303182424","price":19.93,"currency_code":"USD","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0662\/2982\/9887\/files\/img_6447c3d7-0b86-41b4-8a86-1f57145ed590.jpg?v=1747971001","url":"https:\/\/www.whiterainbookhouse.com\/products\/the-cornelia-de-lange-syndrome-steph-e-whitehouse-mat-9798303182424","provider":"WR Book House","version":"1.0","type":"link"}