Beyond the Diagnosis: The Dial-Up Brain: Understanding Executive Dysfunctional in Huntington's Disease (Paperback) (ISBN-13: 9798171769062)

Executive dysfunction is one of the most invisible-and misunderstood-parts of Huntington's disease. A person may know what needs to be done, want to do it, and still struggle to begin, organize, remember, switch tasks, make decisions, or finish.

In Beyond the Diagnosis: The Dial-Up Brain, Melanie Evans combines understandable explanations of executive dysfunction with the real-life experiences of caring for her son, Greg, who lives with Juvenile Huntington's disease.

Using Greg's description of his own thinking-a "dial-up brain"-Melanie helps families understand the space between knowing and doing. Through everyday stories involving medications, appointments, household tasks, communication, safety, routines, and independence, she shows what executive dysfunction can actually look like outside the doctor's office.

More importantly, this book explores how families can respond with practical support while protecting dignity, choice, and participation.

Because sometimes the connection may be slow.

But the person is still there.

Author: Melanie Evans
ISBN-13: 9798171769062
Publisher: Independently Published
Language: English
Published: 09/03/2026
Pages: 234
Format: Paperback
Weight: 0.63lbs
Size: 9.00h x 6.00w x 0.59d