Challenges Of Living With Locked-In Syndrome: Life Can Be Worth Living In Locked-In Syndrome: Various Medical Treatments (Paperback) (ISBN-13: 9798531108548)

The book is an eye-opener to the services around us and how the author has been treated and the immense hoops her family have been put through. The locked-in syndrome (LIS) describes patients who are awake and conscious but severely deafferented leaving the patient in a state of almost complete immobility and loss of verbal communication. When you don't have a disability you take things for granted, getting out of bed, using the bathroom...The author put those things into perspective, and the difficulties you face when you suddenly become disabled.
A beautifully written, eye-opening book, into the life of a strong Mum and woman. An insight into the mind of a lady that has been through so much treated badly at times, but has come through and had her amazing father at her side.