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"What do I do now? Where do I even start?"
If you've just heard the words Alzheimer's or dementia in a doctor's office - or you've been quietly carrying this for months - those are usually the first two questions. This Connecticut guide answers them.
Written by a Physician Assistant in plain, kitchen-table language, it walks you through the diagnosis, the money, the legal planning, and the care choices ahead - all the way from the first two weeks through end-of-life. Every program, phone number, and dollar figure is specific to Connecticut in 2026. No generic filler. No jargon you need a law degree to decode.
The questions this guide helps you answer:
- What do I do in the first two weeks?
- What will this cost, and how long will our savings last?
- Will Medicare pay for a nursing home? (The answer surprises most families.)
- How does Connecticut Medicaid actually work - and how do we qualify without losing everything?
- Can we protect the family home from estate recovery?
- What about the CHCPE waiver - can Mom stay at home instead of a facility?
- My loved one is a veteran. What benefits did they earn?
- What legal documents do we need, and what happens if we wait too long?
- When is it time for assisted living? Memory care? Hospice?
- How do I have the driving conversation? The money conversation? The sibling conversation?
- I'm exhausted. Where do I get help for me?
The care choices you'll understand:
In-home care with family paid as caregivers. Adult day programs. Assisted living. Memory care. Nursing homes. Hospice. The CHCPE waiver. Veterans Aid & Attendance. Each one explained - what it costs, who qualifies, how to apply, and when it's the right fit.
What this guide gives you: a clear next step when everything feels urgent. The right questions to ask your doctor, your lawyer, and your social worker. A working understanding of the system so you can make decisions with confidence instead of panic.
You did not ask for this role. But with the right information, you can do this - and this guide was written to walk beside you, one chapter at a time.
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