Livable Lives: Conversations with the Huntington's Disease Community (Paperback) (ISBN-13: 9798991500302)

Livable Lives is an essential read for anyone interested in understanding Huntington's disease, the personal and emotional impacts of predictive genetic testing, and living an intentional life.

Christy Dearien first learned the name of the disease that has affected her family for generations when her brother was diagnosed with Huntington's disease - a rare and progressive genetic disease with a long list of physical, cognitive, and behavioral symptoms. Learning that she and other family members might also develop this disease turned her world upside down.

In Livable Lives, Christy tells her story along with stories from around the globe to explore how an incurable family disease impacts relationships, identity, life decisions, and more. Her conversations with others revealed the importance of pursuing what one gene-positive young woman calls her "livable life" - a life lived with intention and meaning before symptoms begin.