Squint: My Journey with Leprosy (Hardcover) (ISBN-13: 9781604731194)

Lying in a hospital bed, José P. Ramirez, Jr. (b. 1948) almost lost everything because of a misunderstood disease. When the health department doctor gave him the Handbook for Persons with Leprosy, Ramirez learned his fate. Such a diagnosis in 1968 meant exile and hospitalization in the only leprosarium in the continental United States--Carville, Louisiana, 750 miles from his home in Laredo, Texas.

In Squint: My Journey with Leprosy, Ramirez recalls being taken from his family in a hearse and thrown into a world filled with fear. He and his loved ones struggled against the stigma associated with the term "leper" and against beliefs that the disease was a punishment from God, that his illness was highly communicable, and that persons with Hansen's disease had to be banished from their communities.

His disease not only meant separation from the girlfriend who would later become his wife, but also a derailment of all life's goals. In his struggle Ramirez overcame barriers both real and imagined and eventually became an international advocate on behalf of persons with disabilities. In Squint, titled for the sliver of a window through which persons with leprosy in medieval times were allowed to view Mass but not participate, Ramirez tells a story of love and perseverance over incredible odds.

Author: Jose P. Ramirez
ISBN-10: 1604731192
ISBN-13: 9781604731194
Publisher: University Press of Mississippi
Language: English
Published: 02/01/2009
Pages: 240
Format: Hardcover
Weight: 1.11lbs
Size: 9.24h x 6.50w x 0.94d

Review Citation(s):
Library Journal 03/01/2009 pg. 84