The Strange Tale of Ben Beesley (Paperback) (ISBN-13: 9780615585512)

In the spring of 2008, doctors diagnosed Matt and Shannon McNeil's children with a rare, degenerative, and ultimately terminal genetic condition called MPS III. There were simply no effective treatment options to help them. By the winter of 2009, Matt started writing as a way to put some space between himself and his grief. He wrote THE STRANGE TALE OF BEN BEESLEY about a fly named Ben who sets out to save his friends from a cruel spider's venom. Although BEN BEESLEY is an exciting adventure story written for middle grade readers (ages 9-12), it is also an expression of a father's hope for his sick kids. Part of that hope is finding a cure for MPS III, which is why proceeds from the sale of this book will be donated to the National MPS Society to support research. With your help, the next family that receives this diagnosis might also be told about newly discovered treatment options. Thank you!