Tolerable Range: An Orphan Drug Novel (Paperback) (ISBN-13: 9781919543130)

A child is waiting. A number decides how long.

Nine-year-old Daniel Rahman has a rare mitochondrial disease. A treatment exists. It works. It has already been approved.

But at 2.25 million per patient, the system decides his life is not worth the cost.

When investigative journalist Maya Nair meets Daniel and his family, she expects another story about delay, bureaucracy and impossible choices. Instead, she uncovers a pricing strategy designed to protect global profits, a patient organisation entangled with the company that controls the treatment, and a network of advisers working to keep families quiet.

As Daniel's window for treatment narrows, Maya follows the money from hospital wards to investor calls, access committees and closed-door meetings. Each document reveals a system capable of managing evidence, controlling public pressure and deciding whose suffering can be tolerated.

To expose it, Maya must prove not only what the treatment costs, but who benefits when a child runs out of time.

Tolerable Range is the first novel in The Genome Covenant, a biotechnology thriller series about medicine, power and the institutions that decide the value of a human life.