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What the Hell Happened to My Brain?: Living Beyond Dementia (Paperback) (ISBN-13: 9781849056083)
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Kate Swaffer
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Books
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Description
xKate Swaffer was just 49 years old when she was diagnosed with a form of younger onset dementia. In this book, she offers an all-too-rare first-hand insight into that experience, sounding a clarion call for change in how we ensure a better quality of life for people with dementia.
Kate describes vividly her experiences of living with dementia, exploring the effects of memory difficulties, loss of independence, leaving long-term employment, the impact on her teenage sons, and the enormous impact of the dementia diagnosis on her sense of self. Never shying away from difficult issues, she tackles head-on stigma, inadequacies in care and support, and the media's role in perpetuating myths about dementia, suggesting ways in which we can include and empower people with the diagnosis. She also reflects on the ways in which her writing and dementia advocacy work have taken her on a process of self-discovery and enabled her to develop a new and meaningful personal identity. Kate's powerful words will challenge misconceptions about dementia, and open our eyes to new ways of supporting people with the diagnosis. A must read for people with dementia and their families as well as for professionals and carers.Author: Kate Swaffer
ISBN-10: 1849056080
ISBN-13: 9781849056083
Publisher: Jessica Kingsley Publishers
Language: English
Published: 01/21/2016
Pages: 392
Format: Paperback
Weight: 0.80lbs
Size: 8.50h x 5.50w x 1.10d
By Kate Swaffer
xKate Swaffer commenced her professional career as a nurse specialising in dementia and aged care. Following her diagnosis of younger onset dementia, she completed a BA in Writing and Creative Communications, a Bachelor of Psychology and a MSc in Dementia Care at the University of Wollongong, Australia. She now works as an advocate and activist for dementia and aged care, has published many articles and a book of poetry and has presented nationally and internationally on dementia. In 2015, she was named Dementia Leader of the Year in the University of Stirling International Dementia Awards and Emerging Leader in Disability Awareness in the National Disability Awards, was winner of the Bethanie Education Medallion, and was a state finalist in the Australian of the Year Awards for 2016. She is Co-founder and Co-chair of Dementia Alliance International, a board member of Alzheimer's Disease International and is to become a member of the World Dementia Council in February 2016. She blogs at www.kateswaffer.com, tweets as @kateswaffer and can also be found on Facebook.
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